Saturday, May 16, 2009

After much prayer and investigation on the treatment options I was given, we finally made a decision.  I will be undergoing AC/TH which is an aggressive but very successful plan.  I compared the dose dense treatment (traditional administration) and the clinical trial.  It made the most sense to try the trial.  I will be carefully monitored and I can opt out at any time.  I am praying (and you can help out here) for the mildest side effects possible, but I'm trying to prepare for whatever.  I really do not like the whatever part!!!!!!!

Went wig (Cranium prosthesis??) shopping on Tuesday to get an idea of what it will be like.  Did you know that when you shoe shop you wear footies and when you wig shop they put a large footie on your head??  Oh, wait, I think it's called a skull cap.  We had a few laughs (long, straight and red does not work!!) and I have to keep looking!

I will be having a port put in sometime next week.  It's an outpatient procedure.  They say it takes about 4 hours and I get a twightlight drug.  The chemo will start on Thursday.  I'm not sure of the time I will be there, but the first time is always longer so they can monitor how you do.  

I am enjoying these days of feeling good.  I am so grateful for all the wonderful ways that people have reached out to help us at this uncertain time.  I just can't believe the net of support that I feel surrounds me.

Moocho Gracious!
Karen

3 comments:

  1. So good to hear you've made your decision. St. Mary's Prayer Group is working on you! Love, Linda Balla

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  2. We will all be praying for the chemo to be the easiest it can possibly be for you. I'm hoping - really hoping - that you'll be able to make the trip out here. Keep that great attitude and sense of humor. We are all supporting you every minute. Later, Karen

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  3. Karen,
    I've been praying for you and keeping you in my thoughts. I wonder if you'd like me to mail some stuff to you...hats, bandanas, and more that I have had in my car since that day we were going to meet and were unable to.

    Also, if you and yours would like to take a drive out to Glen ellyn Friday, June 12th at 6 p.m, it's our American Cancer Society Relay For Life of Glen ellyn, Wheaton and Winfield and I WOULD LOVE to have you walk that survivor lap, the first lap of the event with me and my other 'warrior' friends who have survived various cancers. My dad will be there too as a recent prostate cancer survivor.
    Our caregivers join us on the second lap and it's really a wonderful and moving thing. Let me know if you need more info. It's at Glenbard South H.S. on Butterfield Rd and Park blvd.

    You know that you can call or email me anytime and I am there for ya!

    Che wishes she was here to help more. I'll try to be even 1/10 of the great caregiver she was so do call anytime!

    Peace and Love,
    April

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