Wednesday, November 25, 2009

Dear Friends,

It has been a busy week and a half. I finished nearly 250 music reports and organized schedules for the Winter Program in December. I am glad to have this Thanksgiving break. Emily and Dan will be home and we will have a small gathering tomorrow with my mom, aunt and mother-in -law.

I am a little more tired these days, but I have only one more round of chemo on the 30th. I'm so ready to be done with that. I was fitted for a glove to keep the lymphodema in check. I still need to go for therapy to reduce the swelling. The long list of appointments continues.

I met with the surgeon and unfortunately the wound cavity is not healing. The tissue is healthy but the chemo takes away my ability to heal. We have two options. See how it goes once I stop chemo or have surgery to move healthy tissue into the wound. I think they call this a flap. Because I still need radiation, they are not sure at this point of the best way to go. I will see the Dr. again on Dec. 18th. The thought of radiation is scary right now. I have to keep remembering to take one day at a time!

I would like to take this opportunity to thank you all for the blessing you have been to me with your concern and support. Although we don't always understand God's plan for us, he gives us the strength to get through. We have much to be grateful for!

I wish you and your families a wonderful Thanksgiving!

Love,
Karen

Sunday, November 15, 2009

Hello again!

Time for a weekly update. I had my herceptin on Monday. Luckily that only takes about 40 minutes. Add in the wait time and it's about a 2 hour visit. Tomorrow is another chemo day so I'll be at Loyola for another long visit. However, after that I only have one more chemo treatment left! I can't wait. Looking ahead to radiation is a bit scary, but I will have time before that starts to hopefully energize.

My infection wound is still being packed 2-3x a day. The tunnel is now down to 9cm. from 10cm. deep. Yes, it will take a long time to heal! Tim is being a trooper with the packing.

The big change this week is that I started therapy for lymphodema. It was way more than I expected! I have several layers of gauze and foam wrapped from my fingers to my armpit. It's quite a sight. Most of the kids at school think it looks cool! Thanks goodness I teach the young ones! At first I panicked because I am typing about 250 report cards and I have to play the piano as we prepare for the Winter Program! I told the therapist this and they wrapped accordingly so that I can somewhat do both. I will be going to the rehab facility 3x a week. The only positive is that therapy includes a massage of the lymph nodes which is nice and relaxing. The goal is for the swelling to go down and then I will be measured for a sleeve and glove. I will need to wear that daily as long as there is any swelling. The condition is chronic and I will always need to be aware of it. I am praying that I won't have to wear the sleeve permanently.

I would love to have less to tell you because that would mean I have less issues. Hopefully that will happen when I have radiation. I'm dreaming of minimal side effects!

Have a great week!

Karen

Saturday, November 7, 2009

Hi All!

What a beautiful day it was today. Finally some warmer, dry weather.

It's time for that weekly update. Monday I saw the infectious disease Dr. who is in charge of my antibiotics. He was pleased with the healing of the wound and prescribed one more week of antibiotics. The only concern is that when you are on chemo, an infection can occur with minimal warning. We'll pray that doesn't happen!

Next on to the cancer center and a blood draw. My visit with the oncologist went well. Good counts again. I checked into the chemo lab at 3:30 and checked with them several times because my treatment lasts for 4 hrs. At 5:30 the head nurse came out and said they wouldn't have time to treat me. Big disappointment!! I went back on Tuesday and had the chemo and herceptin. My Dr. made a special point of coming to see me and letting me know that will never happen again. My patience level is definitely being tested!!

After Loyola, I went to the Rehabilitation Center for the lymphodema that has developed in my left arm and hand. I will have to go to therapy 3x a week until they get it under control. More
appointments. Oh, joy!

I was back at Loyola on Wednesday to get my shot. Still more tired than usual, but much better than when the infection was brewing. I'm grateful for that!

Thanks for checking in!

Karen